Empowering Women to Be Their Own Health Advocates Through Education and Support for Expectant Mothers
Mission
We are a registered 501(c)(3) non-profit organization dedicated to empowering the community with education and resources to advocate for the health of themselves and their babies. Our mission serves to provide resources such as work shops, gift bags, blood pressure monitors, and much more to expectant mothers. Not only do we support expectant mothers, but we also provide resources and love to families experiencing the pains of Eclampsia. Our founder, Maria Gagnon, suffered from Eclampsia and started Preemie Inc. to help expectant mothers know the facts, please read below for statistics, facts, ways to get involved, first-hand accounts, and much more.
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Know the Facts
What is Preeclampsia?
Preeclampsia is a complication of pregnancy. With preeclampsia, you might have high blood pressure, high levels of protein in the urine that indicate kidney damage (proteinuria), or other signs of organ damage. Preeclampsia usually begins after 20 weeks of pregnancy in women whose blood pressure had previously been in the standard range.
Left untreated, preeclampsia can lead to serious — even fatal — complications for both the mother and baby.
Early delivery of the baby is often recommended. The timing of delivery depends on how severe the preeclampsia is and how many weeks pregnant you are. Before delivery, preeclampsia treatment includes careful monitoring and medications to lower blood pressure and manage complications.
Preeclampsia may develop after the delivery of a baby, a condition known as postpartum preeclampsia.
Symptoms
The defining feature of preeclampsia is high blood pressure, proteinuria, or other signs of damage to the kidneys or other organs. You may have no noticeable symptoms. The first signs of preeclampsia are often detected during routine prenatal visits with a health care provider.
Along with high blood pressure, preeclampsia signs and symptoms may include:
Excess protein in the urine (proteinuria) or other signs of kidney problems
Decreased levels of platelets in the blood (thrombocytopenia)
Increased liver enzymes that indicate liver problems
Severe headaches
Changes in vision, including temporary loss of vision, blurred vision or light sensitivity
Shortness of breath, caused by fluid in the lungs
Pain in the upper belly, usually under the ribs on the right side
Nausea or vomiting
Weight gain and swelling (edema) are typical during healthy pregnancies. However, sudden weight gain or a sudden appearance of edema — particularly in your face and hands — may be a sign of preeclampsia.
Causes & Risk Factors
The exact cause of preeclampsia likely involves several factors. Experts believe it begins in the placenta — the organ nourishes the fetus throughout pregnancy. Early in pregnancy, new blood vessels develop and evolve to supply oxygen and nutrients to the placenta. These blood vessels don't seem to develop or work properly in women with preeclampsia. Problems with how well blood circulates in the placenta may lead to the irregular regulation of blood pressure in the mother.
Conditions that are linked to a higher risk of preeclampsia include:
Preeclampsia in a previous pregnancy | Being pregnant with more than one baby | Chronic high blood pressure (hypertension) | Type 1 or type 2 diabetes before pregnancy | Kidney disease | Autoimmune disorders | Use of in vitro fertilization
Conditions that are associated with a moderate risk of developing preeclampsia include:
First pregnancy with current partner | Obesity | Family history of preeclampsia | Maternal age of 35 or older | Complications in a previous pregnancy | More than 10 years since the previous pregnancy
Eclampsia Experience
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Let’s start at the beginning, I found out very early on that I was pregnant 5 weeks to be exact, and only by chance. I had gone to my primary Doctor for a check-up and was put on blood pressure meds for the first time. Before taking my Doctor said I was not able to take it if there was a chance I was pregnant. I said no I couldn’t be because we had been trying for years with no luck and my periods were always out of whack. Just by chance on my way to work that night, I got a test just to make sure and surprise I was in fact pregnant.
At my first Doctor appointment, we discussed that I had pregnancy-induced high blood pressure and would more than likely end up with preeclampsia at some point during my pregnancy. My Doctors did a very good job at monitoring me and I was seen quite frequently just to make sure everything was ok with me and the baby.
My first “episode” was at 20 weeks and my blood pressure spiked, luckily I was at work and they whisked me down to labor and delivery to get me checked out. At that point, they put me on modified bed rest and told me to check my blood pressure every few hours. Everything was going well and I had to do the 24-hour urine a few times.
During Hurricane Irma, lucky me, I missed my ob-gyn appointment because of the hurricane so they fit me in after everything opened back up. The protein in my urine was through the roof and I was admitted straight from the Doctor’s office to the hospital. They monitored me and the baby and did a 24-hour urine collection and let me go home on strict bed rest, also gave me two steroid shots for his lungs just in case he ended up coming early.
I was told to check my blood pressure and for anything above 160/90, I was to call and go to the hospital asap. I laid down for bed and check one last time and it was 190/110. The next couple of days are mostly a blur, I was put on so many different blood pressure meds to try and get it to come down and a magnesium drip. Nothing was working and the nurse pulled my husband aside and said you need to do what you can to help her relax otherwise you may lose her and the baby.
They can in to do an ultrasound and the baby wasn’t moving much, my dr had headed home for the night at this point when the ultrasound tech left I just knew something was up. The nurse had called into my room at 6 PM to ask when the last time I ate or drank anything and within minutes the anesthesiologist and the whole surgical team were in my room and I was whacked away for an emergency C-section.
My son was born at 34 weeks at 642 pm and taken straight to the NICU, he was there for 2 weeks with some respiratory issues and jaundice. They never prepare you for a NICU baby as it is the worst thing I have ever had to go through in my life, every time I left my heart was broken into a million pieces because it’s not normal for you to be discharged from the hospital and not being able to take your baby with you.
He is now a happy and healthy 5-year-old, everyone always asks if we want another but, to be honest, I’m terrified to put my family through that again. I just wish there was more education on what preeclampsia was, I had no idea things could go so bad so quickly and we need there to be more information brought up when we first find out we are pregnant, even if we are at risk or not.
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Hi Friends and Welcome! My name is Maria, Founder of Preemie, Inc. I am an Eclampsia survivor and mom of a 28-weeker NICU Graduate.
Preemie, Inc was created from my traumatic birthing experience in hopes to raise awareness of eclampsia and empower women to advocate for themselves and their health.
Unbeknownst to me, my journey began on the morning of August 10, 2015. I woke up as I normally did in the months prior. It was my mom’s day off, thankfully, and I was headed over to hang out. I felt fine. I got up, showered, and overall felt good at 28 weeks pregnant; or at least I thought I was. While in the shower I remember getting a feeling over my body. I started to see twinkles or floaters but thought it was because the sunlight was shining in the window, that happens to be inside the tub. Due to my lack of knowledge, I ignored a huge red flag aka a side effect of what was about to happen to my body. I finished getting ready, stopped to get gas at WaWa and arrived around 8-ish. She was just out of the shower herself. I did what I normally do when I go to visit - I sat on her tan leather couch, staring out into the backyard. This was the house I grew up in, so it feels comfortable and homey to me. I wasn’t there more than 30 minutes and distinctly remember the feeling – this God-awful feeling that would forever change my life and the life of my unborn son.
As I stared outside, the mid-morning sun was still rising. It was bright and calm. Mom and I were in a conversation, although I couldn’t tell you what it was about, and mom was in the bathroom getting herself ready. She kept peeking her head out, to make eye contact as we chatted. Then that feeling from the shower came back over me. I sat there while this feeling quickly crept over my body, trying to figure out what I was “feeling”. Those twinkles came back but this time it was faster, and a lot more. My vision began to go as the flutters took over and I realized I was losing control – control of my vision, and my body and I said, “Mom I feel funny”! Then my vision quickly closed in and became black. That is the last thing I remember before my body went eclamptic. I was lying on my mother’s floor, the home I grew up in and was so familiar and homey to me, seizing, with my unborn 28-weeker still inside of me. Mom called 911 and they rushed me to Bayfront ER where I seized again. This time my throat was closing, I was struggling to breathe and going into respiratory failure. The emergency personnel called “Code Blue” over the intercom which flooded the hospital halls. They had to intubate me to keep us alive. I was induced into a coma and my son was removed by emergency c-section. He was rushed to All Children’s Hospital which thankfully was attached to the hospital I was in. My mom stayed with me, and Gregory ran behind the doctors taking Jackson to the NICU.
I woke up 5 days later in the ICU and a breathing tube down my throat. I had no idea what was going on, why we were there, or what was down my throat hindering me from speaking. At that point, I started to freak out and attempt to pull the tube out. The nurses ran in and restrained me. I was heavily drugged from being induced into a coma, and they were weening me from the sedatives, to be able to remove the tube. I remember my mom standing over me and telling me I had my son. I was confused and scared. I didn’t really know what she was talking about or what that meant. The process to remove the breathing tube took a couple of days, from what I remember, and felt like the longest couple of days of my life. Being coherent with a tube down your throat is not a pleasant feeling, especially when you have no idea why it happened.
Once the tube was out, I could speak again. It was at this point that I remember, somewhat understanding what happened. I was still heavily medicated, but the realization that I was no longer pregnant, and my child was born 3 months early started to set in. I was not able to see him until I was discharged from ICU. This would happen on day 7. For the next two days, I had a bunch of Dr’s come in to check on me; my OB/GYN, Cardiologist, and Neurologist – I’m sure there were others. I do remember one Dr very well. He was the Dr. who told me it was pointless to breastfeed my son because I was on so much medication. That stung so bad, and I cried a lot. I was devastated.
At the time I didn’t understand. I didn’t know why this happened to me, why did my body fail me? And now I can’t feed my child who needs it more than ever. I still haven’t even met my son. All I could think about was how my son was in a hospital, alone, hooked up to machines fighting for his life.
I remember my Aunt Wendy was there to be with my mom. Gregory was there and holding my hand. My girlfriends Monica and Amanda came by to see me. The nurses were checking on me frequently. My blood pressure was taken every 30 minutes to make sure it was stabilized.
PART TWO COMING SOON
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SO MANY THINGS! For starters, I feel I was completely robbed of my pregnancy. I feel like I should’ve been labeled high risk from the get-go since I had hypertension prior to pregnancy.
Baby shower – which was scheduled a couple of weeks after my trauma. Then with the NICU stay, it was canceled. I didn’t get to have a fun get-together where everyone comes to celebrate us, bring gifts, play fun games, and eat yummy food.
Baby bump, feeling the baby kick, move – Jackson was taken out via emergency C-section at 28 weeks. At that point, I was barely showing. I might have had some signs of showing, but definitely not completely noticeable.
Breastfeeding!! I was devastated I couldn’t breastfeed due to the various medications I was on. My mom and Greg tried to pump and was told by the Drs that it’s pointless because of all the medication I was on.
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There’s no way to really prepare for your child when they are born prematurely. I wish that we did have to experience birth in a traumatic way.
When did you realize you had birth trauma? When we were in the NICU. I knew I had experienced trauma that I denied for years. I felt that I was strong enough to handle and I needed to stay strong for my baby, I denied therapy and social workers who came around to talk. I was afraid of showing how scared I really was, and felt that would equate to being weak.
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It has almost ruined it – and it’s not the same. We are still together, trying to co-parent for our son. When birth is traumatic like ours, trauma is had by all parties involved, not just the mother who is experiencing the physical trauma. Gregory was traumatized, seeing me on my deathbed, our son fighting for life when he didn’t ask to be brought into it like this.
My mom was traumatized seeing me seizing on her living room floor, flood coming out of my mouth, and 5 months pregnant. She had to watch the paramedics try to stabilize me with scared looks on their faces as they’d never had a call like this before. Not to mention when they hear “Code Blue” ring over the intercom as I was seizing for the second time, going into respiratory failure.
They were traumatized when the chaplain walks up to them to pray… My close gfs were traumatized when they came to see me at the hospital only to find my in an induced coma with a tube down the throat..
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Trusting myself that, “I’ve got this”, I while still working on my healing process. I do remember that I was very anxious - a lot.
I was fearful of having more seizures, even though I knew that my seizures were directly related to the pregnancy. I still had a thought in the back of my mind that it would come back.